Family who lost a child say palliative care funding 'heart-warming'
RNZ: Families who have lost a child say new funding from the government into paediatric palliative care will mean others won't have to do it alone.
Government to spend $15.5m on palliative care for children
RNZ: The government will spend $15.5m over four years to set up a national paediatric palliative care service, Health Minister Simeon Brown has announced.
Budget provides funding boost for services for families caring for children with life-threatening illnesses
Stuff: Families caring for children with life-threatening illnesses will receive more specialist support at home as part of a $15.5 million investment to expand palliative care nationwide.
Dying Kiwi teen befriended by US pop star SZA highlights value of paediatric palliative care
NZ Herald: Not many Kiwi teenagers can say they have been invited to eat fast food on a Los Angeles beach by an international pop star, but RJ Abood was special.
Two siblings died 17 years apart. One did so at home thanks to this Wellington doctor and her team
NZ Herald: There were few comforts for Angela Schleif as she watched her second child die from the rare genetic disorder Alpers Syndrome, 17 years after her first.
‘Kids deserve to die without pain’: The charity filling the gap for New Zealand’s sickest children
Stuff: When Kristin Davis’ daughter Meila was dying from bone cancer, managing her pain often came down to a phone call in the middle of the night.
NZ knew how to care for the dying - then forgot: We're back
The Post: After a decade of palliative care neglect in which New Zealand slumped by world standards, there is new hope the terminally ill may soon be suffering less
The doctor who beat the odds to ease pain for NZ’s dying children
The Listener: After a childhood of violence and broken dreams, Amanda Evans has forged a career making a huge difference to the lives of dying children. She is one of only two palliative-care specialists for children in NZ
Father of boy, 5, who died without specialist end-of-life care makes plea to health minister
Stuff: The father of a terminally ill five-year-old who died without specialist end-of-life care has urged Health Minister Simeon Brown to ensure no other families have to navigate the “scarring” journey alone.
Riley’s whānau joins national fight for care
Wairarapa Times - Age Midweek: Eighteen-month-old Riley Peterson loved bunnies, walks in the push-chair, the swings at Queen Elizabeth Park, and most of all, her mum and dad. She was her parents’ “whole world”.
The desperate need for a child palliative care service
RNZ: Kathryn Ryan talks to doctor Amanda Evans and mum Rachel Hill about her son Otis.
The urgent need for a care service for dying children
The Post: Halfway into its three-year pilot, Wellington’s philanthropy-funded child palliative care service has three times as many patients as expected, showing how many families have been missing out. The chief children’s commissioner supports a call for urgent funding of a new national service for dying children, calling the current situation “untenable, inequitable and inadequate”.
'You simply don't get the support' - Calls for nationwide children's strategy
1News: Talking to families who recieved paediatric palliative care, and those who didn’t
New Zealand falling behind in care of terminally ill children - expert
Herald article: A specialist paediatric palliative care doctor says New Zealand is falling behind other nations in its care of terminally ill children and the Government must step up to help.
Webinar: Tamariki and rangatahi’s grief is everyone’s business
Webinar hosted by Dr Amanda Evans on grief.
Helping parents navigate the unthinkable ‒ why are dying kids reliant on charity?
The Post article: A secret donor’s gift will help more families of dying children get specialist support to navigate the unthinkable. But why is an essential health service having to rely on charity?
How to talk to people who are dying
Spinoff article: Some tips on being good company to someone who is facing their mortality.
