Media and Publications

Learn more about paediatric palliative care and childhood bereavement.

In the News

'It's Just So Not Right': The Postcode Lottery for the Care of Dying Children (Stuff, July 2022)(link)

The Ongoing Cost of Our Failure to Support Childhood Grief (Stuff, August 2022) (link)

How to talk to people who are dying (The Spinoff, August 2023)(link)

Helping parents navigate the unthinkable- why are dying kids reliant on charity? (The Post | Te Upon O Te Ika, September 2023) (link)

Podcasts | Webinars

Pedipal: Dan and Sarah interview paediatric palliative care specialist Amanda Evans, who teaches them a bit of New Zealand history, some Māori concepts of health and illness, and a lesson on just how cool Jacinda Ardern really is. (Pedipal, Episode 14 April 2022)(link)

In this Hospice NZ breakfast session, Amanda Evans will explore why we all need to play our part in supporting children who are grieving and share tips on how we can do that. (Tamariki and Rangatahi’s grief is everyone’s business, recorded 1 December 2022)(link)

  • Evan, Amanda. “Tamariki and Rangatahi’s grief is everyone’s business.” (recorded webinar: Thursday 1 December 2022). (59 minutes)

    Uploaded to MyHealthHub via vimeo Thursday 15 December 2022.

    https://vimeo.com/781706821

Ethan Rowe (7 years old)

Publications

Managing Ethical Issues
by Amanda Evans, Richard DW. Hain, Delia Birtar
in Children’s Palliative Care: An International Case-Based Manual. (2020)
(link to access chapter)

  • Evans, A., Hain, R.D., Birtar, D. (2020). Managing Ethical Issues. In: Downing, J. (eds) Children’s Palliative Care: An International Case-Based Manual. Springer, Cham. https://doi.org/10.1007/978-3-030-27375-0_19

Pediatric Palliative Care in a Pandemic: Role Obligations, Moral Distress, and the Care You Can Give.
by Amanda Evans, Monique Jonas and John Lantos in Pediatrics (July, 2020); 146(1):e20201163
(link to dowload article)

  • Evans A., Jonas M., Lantos J.. Pediatric Palliative Care in a Pandemic: Role Obligations, Moral Distress, and the Care You Can Give. Pediatrics. 2020;146(1):e20201163
    https://pubmed.ncbi.nlm.nih.gov/32461261/

Conceptions of dignity in the Charlie Gard, Alfie Evans and Isaiah Haastrup cases.
by Monique Jonas and Amanda Evans
in Bioethics (2020); 34: pp 687– 694
(link to access journal article abstract)

  • Jonas, M., Evans. A.. Conceptions of dignity in the Charlie Gard, Alfie Evans and Isaiah Haastrup cases. Bioethics. 2020; 34: 687– 694. 
    https://doi.org/10.1111/bioe.12749

Audit of Psychosocial and Palliative Care Support for Children Having Allogeneic Stem Cell Transplants at the New Zealand National Allogeneic Transplant Centre.
by Amanda Evans, Hiran Thabrew, Bruce Arroll, Nyree Colee and Ross Drake 
in Children (2021); 8: 356
(link to download article)

  • Evans A., Thabrew H., Arroll B., Cole N., Drake R.. Audit of Psychosocial and Palliative Care Support for Children Having Allogeneic Stem Cell Transplants at the New Zealand National Allogeneic Transplant Centre. Children. 2021; 8(5):356. https://doi.org/10.3390/children8050356

Trends in Pediatric Palliative Care Research. 
Commentary by Dr Amanda Evans In PedpalASNET (2023); Issue 9
(link to download commentary)

  • Evans, A., Andrews, E. (Ed), Siden, H. (Ed). Trends in Pediatric Palliative Care Research. PedpalASNET (2023: issue 09)